ECCO's mission is to improve the care of patients with IBD in all its aspects. Many great IBD research initiatives are in need of valuable input from IBD specialists. Hence, upon the approval of the Governing Board, ECCO Members, Congress Delegates and eNewsletter subscribers are asked to contribute their answers. Survey proposals are channeled through the respective ECCO Committee and undergo through a strict evaluation process, to ensure that ECCO Members' valuable time is well spent.
As a thank you for your participation, all survey participants are invited to submit their email address for an annual lottery drawing of 3 x ECCO Interaction Tickets for the upcoming year.
Please send a short email to the ECCO Office at This email address is being protected from spambots. You need JavaScript enabled to view it..
Kind regards,
The Governing Board of ECCO
Y-ECCO/ClinCom Survey 2025
The call for new survey proposals is now open.
The submission deadline is September 13, 2024.
More information below:
Read More
CLOSED SURVEYS
2024
A TREAT-TO-TARGET APPROACH TO IBD
Project leader:
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Mohammed Tauseef Sharip |
| Purpose and outcome: |
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| Target group: |
ECCO'24 Congress Delegates |
2023
Attitudes and Practices Regarding the Benefit-Risk Profile of Janus Kinase Inhibitors for the Treatment of Inflammatory Bowel Disease
Project leader:
|
Sailish Honap |
| Purpose and outcome: |
Results published in Eur J Gastroenterol Hepatol, 2023 Nov 1;35(11):1270-1277. doi: 10.1097/MEG.0000000000002650. Epub 2023 Sep 17
|
| Target group: |
ECCO'23 Congress Delegates |
2022
Nutritional Management of Acute Severe Flare of IBD
Project leader:
|
Katja Selin |
| Purpose and outcome: |
Poster Presentation at ECCO’23,
Journal article:
K A Selin, S Andersson, K Bilén, H Strid, J Björk, F Bresso, C Hedin, P878 Country is the main determinant of differences in nutritional therapy practices across Europe: Results of the Y-ECCO ClinCom Survey 2022, Journal of Crohn's and Colitis, Volume 17, Issue Supplement_1, February 2023, Page i996, https://doi.org/10.1093/ecco-jcc/jjac190.1008
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| Target group: |
ECCO'22 Congress Delegates |
2021
Identifying clinical practices and clinician attitudes towards treating mild Crohn’s disease
Project leader:
|
Robin Dart |
| Purpose and outcome: |
Poster presentation at ECCO’22.
Journal article:
R Dart, P Irving, P609 Significant variations in practice in managing mild-Crohn’s disease: results from the 2021 Y-ECCO-ClinCom survey, Journal of Crohn's and Colitis, Volume 16, Issue Supplement_1, January 2022, Pages i539–i540, https://doi.org/10.1093/ecco-jcc/jjab232.735 |
| Target group: |
ECCO'21 Congress Delegates |
Current Practice and perspectives of physicians on thiopurines efficacy, toxicity and utility of TPMT activity and metabolites measurement
Project leader:
|
Paula Sousa, Paula Ministro, Fernando Magro (on behalf of GEDII) |
| Purpose and outcome: |
There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery is, the impact on the quality of life, and the worries about it.
Thiopurines: Use them or lose them? International survey on current and future use of thiopurines in inflammatory bowel disease, https://www.dldjournalonline.com/article/S1590-8658(21)00315-7/fulltext
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| Target group: |
All doctors at any stage of their career managing patients with IBD |
2020
Inflammatory Bowel Disease, Advice Line during SARS-CoV-2 learning from experience
Decision-making in IBD dysplasia management survey
Project leader:
|
Misha Kabir |
| Deadline: |
February 15, 2020 |
| Results: |
Perception of cancer risk in inflammatory bowel disease-associated dysplasia and management practice is influenced by colonoscopy experience and workplace affiliation: results of an international clinician survey (Journal of Crohn's and Colitis, Volume 15, Issue Supplement_1, May 2021)
|
| Target group: |
ECCO’20 Delegates of Educational Programme |
2019
Ileocolonic Crohn’s Disease post-operative recurrence prophylaxis after curative ileocolonic resection with ileocolonic anastomosis
Project leader:
|
Gabriele Dragoni |
| Year: |
2019 |
| Results: |
Short report - The prevention and management of Crohn's disease postoperative recurrence: results from the Y-ECCO/ClinCom 2019 Survey
Check the results here
|
| Target group: |
ECCO’19 Delegates of Educational Programme |
EFCCA Survey on Patient Perceptions on Surgery
Project leader:
|
Antonino Spinelli |
| Purpose and outcome: |
There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery is, the impact on the quality of life, and the worries about it. |
|
Timeline:
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2019 |
| Results: |
Upcoming |
| Target group: |
Patients |
ECCO Strategic Survey
Project leaders:
|
ECCO Governing Board |
| Purpose: |
At the point when the survey was conducted, there was no evidence for transition from paediatric to adult care. This survey was meant to determine which ideas on transition are most important to you as health professional. |
|
Timeline:
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2019 |
| Results: |
The survey results will then serve as a basis for a Topical Review on Transition. |
| Target group: |
ECCO Members, Participants at the 1st Council of National Representatives |
2018
Withdrawal of Therapy in IBD Survey Study
Project leader:
|
Ray Boyapati |
| Year: |
2018 |
| Results: |
European clinician perspective on withdrawing immunosuppression (Journal of Crohn's and Colitis, Volume 13, Issue Supplement_1, March 2019) |
| Target group: |
ECCO’18 Delegates of Educational Programme |
Survey on phenotypic features of couples with IBD and their offspring
Project leader:
|
Joana Torres |
| Purpose: |
The aim was to collect information from the children from couples both affected by IBD and to ascertain those who developed IBD (and other IMID), and thereafter collect information on their disease (year of diagnosis, disease type, disease phenotype).
|
| Year: |
2018 |
| Results: |
|
| Target Group: |
ECCO Regular and Y-ECCO Members as well patient associations |
2017
Physician attitudes about use of immunosuppressive therapy for Inflammatory Bowel Disease in the elderly
Project leader:
|
Webber Chan |
| Year: |
2017 |
| Results: |
Physician attitudes about the use of immunosuppressive therapy for inflammatory bowel disease in the elderly (Journal of Crohn's and Colitis, Volume 12, Issue supplement_1, February 2018) |
| Target group: |
ECCO’17 Delegates of Educational Programme |
EpiCom Survey - Registries across Europe: Epidemiological research and beyond
Project leaders:
|
Ebbe Langholz; Hannah Gordon |
| Purpose: |
At the point when the survey was conducted, there was no evidence for transition from paediatric to adult care. This survey was meant to determine which ideas on transition are most important to you as health professional. |
Timeline:
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2015-2017 |
| Results: |
|
| Target group: |
National Registries |
2016
Assessing aCCess to investigations in IBD (ACCID) – results from an international inflammatory bowel disease survey
Project leader:
|
Y-ECCO and ClinCom |
| Year: |
2016 |
| Results: |
Complete metabonomic and microbiota profiling identifies biomarkers for anti-TNF therapy response (Journal of Crohn's and Colitis, Volume 11, Issue suppl_1, February 2017) |
| Target group: |
ECCO’16 Delegates of Educational Programme |
BIOCYCLE Health Care Provider Survey
Project leaders:
|
Corey Siegel and Edouard Louis |
| Purpose: |
The survey aimed to identify patient and physician opinions and preferences for withdrawal of combination therapy for patients with Crohn’s disease who are in remission. This survey initiative was part of the European Commission funded BIOCYCLE project. |
Year:
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2016 |
| Results: |
|
| Target group: |
US providers identified by CCFA, European GIs identified from a combination of the ECCO and French, German and Belgian GI providers. |
2015
Defining Key Performance Indicators for the Surgical Management of Inflammatory Bowel Disease:
Project leaders:
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Omar Faiz, St. Mark’s Hospital London, London, United Kingdom |
Purpose and outcome:
|
This study aimed to achieve pan-European expert consensus on the development of KPIs that will be used to measure quality of service provision in IBD surgery. The objective was to improve quality of care for the IBD patient by developing new tools with which to measure and focus resources more efficiently. Development of a set of KPIs through national expert consensus techniques should facilitate their incorporation into working practice with the ultimate goal of improving the patient experience and outcomes of IBD services, and improve clinical care processes by devising standard care pathway for patients undergoing IBD surgery. |
Year:
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2015 |
| Results: |
|
| Target group: |
ECCO Members: Consultant colorectal surgeons and consultant gastroenterologists |
|
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2014
ECCO Gender Survey
Project leaders:
|
ECCO Governing Board |
| Purpose: |
Although 44.5% of Congress delegates at the ECCO ’14 Copenhagen Congress were females, a gender imbalance can be seen within ECCO Activities: only one-third of ECCO Committee Members were females. Thus, ECCO President Séverine Vermeire decided to ask female ECCO Members what keeps them from applying |
Year:
|
2014 |
| Results: |
https://www.ecco-ibd.eu/images/6_Publication/6_2_ECCO_News/2014_Nr2_Insert_ECCO_News.pdf |
| Target Group: |
ECCO Members |
2013
Y-ECCO Survey on Training Needs