The United Registries for Clinical Assessment and Research (UR-CARE) platform is an online international registry capturing IBD patients' records in an easy and comprehensive way. UR-CARE is designed for daily clinical practice and research studies and is available to study groups as well as to individual centres.
UR-CARE based manuscript by SING: Biological treatment approach to inflammatory bowel disease is similar in academic and nonacademic centres - prime time for decentralisation of inflammatory bowel disease care?
UR-CARE Registry Validation: Validation of the 'United Registries for Clinical Assessment and Research' [UR-CARE], a European Online Registry for Clinical Care and Research in Inflammatory Bowel Disease
UR-CARE at ECCO´24 L to R: Fernando Magro, Naila Arebi, Filip Baert, Gerhard Rogler, Britta Siegmund
TAKE A FIRST LOOK AT THE UR-CARE DATABASE:
OVERVIEW OF THE IBDIM STUDIES USING THE UR-CARE DATABASE
STUDY: DevEloping Clinical decision support system for Inflammatory Bowel Disease treatment de-escalation (DECIDE). AIM: Generate data that will help the clinician to implement treatment de-escalation for their patients with Inflammatory Bowel Disease in the routine practice.
STUDY: An international Multi-Interventional Registry study for chronic ileoAnal pouCh Leaks in UC (theMIRACLE- project). AIM: Determine the functional anastomotic integrity rate 12 months postoperative after implementing multi-interventional program based on best peri-operative clinical care and assess long-term functional anastomotic integrity rates for patients that received current peri-operative care by performing a retrospective cohort study.
More information on how to conduct studies can be found here.
The Governing Structure of UR-CARE
Filip Baert Managing Director of IBDIM Belgium
Gerhard Rogler UR-CARE Steering Committee Chair Switzerland
Reach out to UR-CARE Team, if you are interested and have any open questions at: This email address is being protected from spambots. You need JavaScript enabled to view it.
This project is facilitated by IBDIM - IBD in Motion GmbH, the Research Unit of ECCO.