Closed Surveys
Management of Pain in Inflammatory Bowel Disease
Project leader
Vivica Dharmadasa
Target group
ECCO’25 Congress Delegates
Purpose and outcome
Publishing soon!
A TREAT-TO-TARGET APPROACH TO IBD
Project leader
Mohammed Tauseef Sharip
Target group
ECCO’24 Congress Delegates
Purpose and outcome
Poster Presentation at ECCO’24 with the title “P0585: A Treat-to-Target Approach”.
Attitudes and Practices Regarding the Benefit-Risk Profile of Janus Kinase Inhibitors for the Treatment of Inflammatory Bowel Disease
Project leader
Sailish Honap
Target group
ECCO’23 Congress Delegates
Purpose and outcome
Results published in Eur J Gastroenterol Hepatol, 2023 Nov 1;35(11):1270-1277. DOI: 10.1097/MEG.0000000000002650. Epub 2023 Sep 17
Nutritional Management of Acute Severe Flare of IBD
Project leader
Katja Selin
Target group
ECCO’22 Congress Delegates
Purpose and outcome
Poster Presentation at ECCO’23 and Journal article: K A Selin, S Andersson, K Bilén, H Strid, J Björk, F Bresso, C Hedin, P878 Country is the main determinant of differences in nutritional therapy practices across Europe: Results of the Y-ECCO ClinCom Survey 2022, Journal of Crohn's and Colitis, Volume 17, Issue Supplement_1, February 2023, Page i996, https://doi.org/10.1093/ecco-jcc/jjac190.1008
Identifying clinical practices and clinician attitudes towards treating mild Crohn’s disease
Project leader
Robin Dart
Target group
ECCO’21 Congress Delegates
Purpose and outcome
Poster presentation at ECCO’22 and journal article: R Dart, P Irving, P609 Significant variations in practice in managing mild-Crohn’s disease: results from the 2021 Y-ECCO-ClinCom survey, Journal of Crohn's and Colitis, Volume 16, Issue Supplement_1, January 2022, Pages i539–i540, https://doi.org/10.1093/ecco-jcc/jjab232.735
Current Practice and perspectives of physicians on thiopurines efficacy, toxicity and utility of TPMT activity and metabolites measurement
Project leader
Paula Sousa, Paula Ministro, Fernando Magro (on behalf of GEDII)
Target group
All doctors at any stage of their career managing patients with IBD
Purpose and outcome
There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery is, the impact on the quality of life, and the worries about it.
Thiopurines: Use them or lose them? International survey on current and future use of thiopurines in inflammatory bowel disease, https://www.dldjournalonline.com/article/S1590-8658(21)00315-7/fulltext
Inflammatory Bowel Disease, Advice Line during SARS-CoV-2 learning from experience
Project leader
Pearl Avery
Target group
IBD Nurses
Journal article:
Gastrointestinal NursingVol. 19, No. 3 https://doi.org/10.12968/gasn.2021.19.3.38
Decision-making in IBD dysplasia management survey
Project leader
Misha Kabir
Target group
ECCO’20 Delegates of Educational Programme
Purpse and outcome
Perception of cancer risk in inflammatory bowel disease-associated dysplasia and management practice is influenced by colonoscopy experience and workplace affiliation: results of an international clinician survey (Journal of Crohn's and Colitis, Volume 15, Issue Supplement_1, May 2021)
Ileocolonic Crohn’s Disease post-operative recurrence prophylaxis after curative ileocolonic resection with ileocolonic anastomosis
Project leader
Gabriele Dragoni
Target group
ECCO’19 Delegates of Educational Programme
Purpse and outcome
Short report - The prevention and management of Crohn's disease postoperative recurrence: results from the Y-ECCO/ClinCom 2019 Survey
EFCCA Survey on Patient Perceptions on Surgery
Project leader
Antonino Spinelli
Target group
Patients
Timeline
2019
Purpse and outcome
There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery is, the impact on the quality of life, and the worries about it. Results upcoming.
ECCO Strategic Survey
Project leader
ECCO Governing Board
Target group
ECCO Members, Participants at the 1st Council of National Representatives
Timeline
2019
Purpse and outcome
The survey results will then serve as a basis for a Topical Review on Transition.
Withdrawal of Therapy in IBD Survey Study
Project leader
Ray Boyapati
Target group
ECCO’18 Delegates of Educational Programme
Purpse and outcome
European clinician perspective on withdrawing immunosuppression (Journal of Crohn's and Colitis, Volume 13, Issue Supplement_1, March 2019)
Survey on phenotypic features of couples with IBD and their offspring
Project leader
Joana Torres
Target group
ECCO Regular and Y-ECCO Members as well patient associations
Purpse and outcome
The aim was to collect information from the children from couples both affected by IBD and to ascertain those who developed IBD (and other IMID), and thereafter collect information on their disease (year of diagnosis, disease type, disease phenotype).
Physician attitudes about use of immunosuppressive therapy for Inflammatory Bowel Disease in the elderly
Project leader
Webber Chan
Target group
ECCO’17 Delegates of Educational Programme
Purpse and outcome
Physician attitudes about the use of immunosuppressive therapy for inflammatory bowel disease in the elderly (Journal of Crohn's and Colitis, Volume 12, Issue supplement_1, February 2018)
EpiCom Survey - Registries across Europe: Epidemiological research and beyond
Project leaders
Ebbe Langholz and Hannah Gordon
Target group
National Registries
Purpse and outcome
At the point when the survey was conducted, there was no evidence for transition from paediatric to adult care. This survey was meant to determine which ideas on transition are most important to you as health professional.
Assessing aCCess to investigations in IBD (ACCID) – results from an international inflammatory bowel disease survey
Project leader
Y-ECCO and ClinCom
Target group
ECCO’16 Delegates of Educational Programme
Purpse and outcome
Complete metabonomic and microbiota profiling identifies biomarkers for anti-TNF therapy response (Journal of Crohn's and Colitis, Volume 11, Issue suppl_1, February 2017)
BIOCYCLE Health Care Provider Survey
Project leaders
Corey Siegel and Edouard Louis
Target group
US providers identified by CCFA, European GIs identified from a combination of the ECCO and French, German and Belgian GI providers.
Purpse and outcome
The survey aimed to identify patient and physician opinions and preferences for withdrawal of combination therapy for patients with Crohn’s disease who are in remission. This survey initiative was part of the European Commission funded BIOCYCLE project.
Defining Key Performance Indicators for the Surgical Management of Inflammatory Bowel Disease
Project leader
Omar Faiz, St. Mark’s Hospital London, London, United Kingdom
Target group
ECCO Members: Consultant colorectal surgeons and consultant gastroenterologists
Purpse and outcome
This study aimed to achieve pan-European expert consensus on the development of KPIs that will be used to measure quality of service provision in IBD surgery. The objective was to improve quality of care for the IBD patient by developing new tools with which to measure and focus resources more efficiently. Development of a set of KPIs through national expert consensus techniques should facilitate their incorporation into working practice with the ultimate goal of improving the patient experience and outcomes of IBD services, and improve clinical care processes by devising standard care pathway for patients undergoing IBD surgery.
ECCO Gender Survey
Project leader
ECCO Governing Board
Target group
ECCO Members
Purpse and outcome
Although 44.5% of Congress delegates at the ECCO ’14 Copenhagen Congress were females, a gender imbalance can be seen within ECCO Activities: only one-third of ECCO Committee Members were females. Thus, ECCO President Séverine Vermeire decided to ask female ECCO Members what keeps them from applying.
Y-ECCO Survey on Training Needs
Project leader
ECCO Governing Board
Target group
ECCO Members
Purpse and outcome
The Y-ECCO Committee conducted a survey to assess trainees' attitudes towards academic medicine, their intentions (or not) to undertake research, and their opportunities to do so. Trainees were invited to participate via their national societies, by ECCO and by other international organisations including ESPGHAN and ECSP.