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Online International Registry

UR-CARE

The United Registries for Clinical Assessment and Research

The United Registries for Clinical Assessment and Research (UR-CARE) platform is an online international registry capturing IBD patients’ records in an easy and comprehensive way. UR-CARE is designed for daily clinical practice and research studies and is available to study groups as well as to individual centres.

Demo Version-Open Acces

Contact

UR-CARE group picture at ECCO’25

Left to right: Filip Baert, Yamile Zabana, Naila Arebi, Britta Siegmund, Gerhard Rogler

News

UR-CARE based manuscript by MIRACLE Cohort

Modified-two-stage versus three-stage approach in ileoanal pouch surgery for ulcerative colitis 

Welcome to the UR-CARE Advisory Board

It is with great pleasure that we officially welcome Valérie Pittet and Nikolaos Viazis as the new UR-CARE Advisory Board (Steering Committee) members.

UR-CARE based manuscript by SING

Biological treatment approach to inflammatory bowel disease is similar in academic and nonacademic centres - prime time for decentralisation of inflammatory bowel disease care?

UR-CARE Registry Validation

Validation of the 'United Registries for Clinical Assessment and Research' [UR-CARE], a European Online Registry for Clinical Care and Research in Inflammatory Bowel Disease

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Learn more

Reach out to UR-CARE Team, if you are interested and have any open questions at:
This project is facilitated by IBDIM - IBD in Motion GmbH, the Research Unit of ECCO.

Overview of the studies using the UR-CARE database

DECIDE

DevEloping Clinical decision support system for Inflammatory Bowel Disease treatment de-escalation

Aim

Generate data that will help the clinician to implement treatment de-escalation for their patients with Inflammatory Bowel Disease in the routine practice.

MIRACLE

An international Multi-Interventional Registry study for chronic ileoAnal pouCh Leaks in UC

Aim

Determine the functional anastomotic integrity rate 12 months postoperative after implementing multi-interventional program based on best peri-operative clinical care and assess long-term functional anastomotic integrity rates for patients that received current peri-operative care by performing a retrospective cohort study.

How to conduct studies?

Find out more
Governance of IBDIM

IBDIM

Managing director

Filip Baert

Belgium

IBDIM Advisory Board / UR-CARE Steering Committee

Chair

Naila Arebi

United Kingdom

Member

Gerhard Rogler

Switzerland

Member

Yamile Zabana

Spain

Member

Valérie Pittet

Switzerland

Member

Nikolaos Viazis

Greece

Find out more

Watch our introduction videos and find the answers to your questions about UR-CARE and how to conduct studies.

IBDIM Privacy Policy

In this privacy policy, we explain all processing activities of IBDIM – IBD in Motion GmbH (IBDIM), the Research Unit of ECCO (European Crohn’s and Colitis Organisation), with its registered seat in 1030 Wien, Ungargasse 6/13.