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Online International Registry

UR-CARE

The United Registries for Clinical Assessment and Research

The United Registries for Clinical Assessment and Research (UR-CARE) platform is an online international registry capturing IBD patients’ records in an easy and comprehensive way. UR-CARE is designed for daily clinical practice and research studies and is available to study groups as well as to individual centres.

Manuscripts

Publications from UR-CARE Users
using the platfrom

YearTitle Link
2026

Optimizing Patient-Reported Outcome Measurement in an Inflammatory Bowel Disease Care Pathway: Results of the PROMOTION Study

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2026

N10 Optimizing colonoscopy timing in IBD using multimodal AI integrating UR-CARE

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2026

P0212 Tracing Transmural Healing in Crohn’s Disease with MRI: correlation between MR enterography, laboratory findings and endoscopy – a retrospective single centre cohort study

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2026

Predictive Utility of the Vedolizumab Clinical Decision Support Tool in a Real-World IBD Cohort: Differential Performance in Crohn’s Disease and Ulcerative Colitis

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2026

P0048 Assessing histologic and endoscopic agreement in Crohn’s disease: a cross-sectional study

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2025

Modified-two-stage versus three-stage approach in ileoanal pouch surgery for ulcerative colitis

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2025

Anastomotic leakage after ileoanal pouch surgery: risk factors and salvage rate

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2025

One-year stoma-free survival of ileoanal pouches for UC in European centers: The MIRACLE project

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2025

First-line anti-TNF agents, ustekinumab and vedolizumab perform similarly in Crohn’ disease, but not in ulcerative colitis

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2024

P503 Differentiation of patients with IBD at increased risk of CRC using UR-CARE: A Single Centre Experience

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2024

P1026 Clinical decision support tool for vedolizumab could not predict outcome in ulcerative colitis patients – a retrospective real-life single-centre cohort study

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2024

Biological treatment approach to inflammatory bowel disease is similar in academic and nonacademic centres – prime time for decentralisation of inflammatory bowel disease care?

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News

Meet us at UR-CARE Corner
ECCO´27

hands on and Live Demonstration of UR-CARE

Date: March 4, 2027
Time: 11:00 – 12:00
Location: UR-CARE Booth, Hall E, Bella Centre

IBDiM at their yearly meeting

Left to right: Tarkan Karakan, Valérie Pittet, Gerhard Rogler, Naila Arebi, Federica Furfaro, Nikolaos Viazis, Anastasi Agres (Persei), Yamile Zabana, César Matarranz (Persei), Filip Baert

Welcome to the
IBDiM Advisory Board - 2026

It is with great pleasure that we officially welcome Tarkan Karakan and Federica Furfaro as the new UR-CARE Steering Committee members.

Reach out to UR-CARE Team, if you are interested and have any open questions at:
This project is facilitated by IBDIM - IBD in Motion GmbH, the Research Unit of ECCO.

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Overview of the studies using the UR-CARE database

DECIDE

DevEloping Clinical decision support system for Inflammatory Bowel Disease treatment de-escalation

Aim

Generate data that will help the clinician to implement treatment de-escalation for their patients with Inflammatory Bowel Disease in the routine practice.

MIRACLE

An international Multi-Interventional Registry study for chronic ileoAnal pouCh Leaks in UC

Aim

Determine the functional anastomotic integrity rate 12 months postoperative after implementing multi-interventional program based on best peri-operative clinical care and assess long-term functional anastomotic integrity rates for patients that received current peri-operative care by performing a retrospective cohort study.

How to conduct studies?

Governance of IBDIM

IBDIM

Managing director

Filip Baert

Belgium

IBDIM Advisory Board / UR-CARE Steering Committee

Chair

Naila Arebi

United Kingdom

Member

Gerhard Rogler

Switzerland

Member

Yamile Zabana

Spain

Member

Valérie Pittet

Switzerland

Member

Nikolaos Viazis

Greece

Find out more

Watch our introduction videos and find the answers to your questions about UR-CARE and how to conduct studies.

IBDIM Privacy Policy

In this privacy policy, we explain all processing activities of IBDIM – IBD in Motion GmbH (IBDIM), the Research Unit of ECCO (European Crohn’s and Colitis Organisation), with its registered seat in 1030 Wien, Ungargasse 6/13.