E-QUALITY

ECCO Quality of Care Project

The E-QUALITY project is an ongoing initiative of the European Crohn’s and Colitis Organisation to ultimately improve the quality of care of patients living with Inflammatory Bowel Diseases (IBD). With this project, ECCO goes back to its historic mission: to improve the care of all patients with IBD in all its aspects through international guidelines for practice, education, research and collaboration in the area of IBD. E-QUALITY Project aims to reach institutions within and outside of Europe to determine the gaps globally.

Bristol Myers Squibb (BMS), Eli Lilly and Company, and Takeda have provided unrestricted grants towards this independent Programme.

Public Profiles of Participating Centres

Full List of Participating Centres

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Publication

Gaps between European Crohn’s and Colitis Organisation quality standards of care and the real world on diagnosis and monitoring inflammatory bowel disease across Europe: results from the E-QUALITY survey

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Publication

Gaps between European Crohn’s Colitis Organisation quality standards of care and the real world on structure of IBD units across Europe: results from E-QUALITY survey

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E-QUALITY Webinars

Join Our Exclusive Webinars on Inflammatory Bowel Diseases (IBD) with Leading Experts

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In ECCO’24 Digital Oral Presentation 3

Gaps between ECCO Quality Standards of Care and the real world data: E-QUALITY Survey-Phase II

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In ECCO’23 Oral Presentation 19

Gaps between ECCO Quality Standards of Care and the real world data: E-QUALITY Survey

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Two major steps

1. Current practice vs. ECCO Recommendations: Identifying the gaps

First step - ECCO will focus on identifying the gaps between the quality of standards as defined by ECCO Statements, and the current practice in daily clinical care. The results will be published in the Journal of Crohn’s and Colitis (JCC).

2. Fill the gaps

Second step - having identified the gaps, ECCO will aim at setting up educational tools and/or activities to fill them. This step will be planned further after the completion of the first step.

The overall estimated duration of the project is 3 to 5 years.

Which papers and tools will be used by ECCO to identify the gaps?

1. ECCO’s Recommendations

ECCO’s Recommendations in term of Quality Standards of Care were published in August 2020 in the Journal of Crohn’s and Colitis “Quality of Care Standards in Inflammatory Bowel Disease: a European Crohn’s and Colitis Organisation Position Paper”. In this Position Statement, ECCO listed 111 quality standards that represent the optimum quality of care according to ECCO, grouped into three main domains:

i) Structure (IBD Core team, interdisciplinary team, IBD facilities)

ii) Process (any process related to IBD, such as diagnosis, monitoring, special situations) and

iii) Outcomes (objectives and quality measures able to quantify the effectiveness of structures and processes)

2. Real World data on clinical practice – UR-CARE

ECCO plans on comparing its recommendations with real-world data collected in the United Registries for Clinical Assessment and Research (UR-CARE), which was launched by ECCO in 2017. UR-CARE is a patient database accessible online which offers comprehensive data collection for patients diagnosed with Crohn's disease, ulcerative colitis and unclassified IBD through extensive forms. It is meant for individual centres, to support the management of patients on a daily basis, and for academic study groups, to perform retrospective studies. For the E-QUALITY project, data which has already been collected will be used retrospectively to compare current clinical practice and ECCO’s Recommendations.

Stay tuned for the first outcomes of this important initiative!