N07 a qualitative study of the impact of inflammatory bowel disease on partners
Thapwong, P.(1);Norton, C.(2);Terry, H.(3);Czuber-Dochan, W.(4);
(1)King's college London, Nursing faculty, London, United Kingdom;(2)King's college London, Nursing faculty- Adult nursing department, London, United Kingdom;(3)Crohn's and Colitis UK, Policy- Public Affairs and Research, London, United Kingdom;(4)King's college London, Nursing faculty- Adult nursing, London, United Kingdom
Background
Methods
Twelve participants, including six people with IBD with their six partners, were purposively selected, no other family members (parents / children, sibling) came forward to participate in the study. The in-depth, semi-structured online interviews were conducted via Skype, Zoom, or Microsoft Teams between February-June 2020. Interviews were audio-recorded, transcribed verbatim, and analysed using inductive thematic analysis by Braun and Clarke.
Results
Four main themes emerged during the analysis under the central theme “our relationship with IBD, for better or worse”. IBD affected the partners in terms of their own relationship, relationship with others, everyday life, and emotional and mental well-being. The theme “our relationship” showed the impact of IBD on the relationship between a couple, including the intimate relationship, family planning, role change as partner and carer, and the importance of honest communication. IBD also affected wider relationships with family, children, and social life, but teamwork could mediate negative impact in relationships. Emotional well-being was impacted by living in constant fear and guilt. Humour and knowledge of IBD reduced negative impacts. IBD impacts on everyday life (diet, finances, and travel) for both patients and partners. Planning for uncertain situations was helpful to reduce restrictions.