Surveys

ECCO's mission is to improve the care of patients with IBD in all its aspects. Many great IBD research initiatives are in need of valuable input from IBD specialists. Hence, upon the approval of the Governing Board, ECCO Members, Congress Delegates and eNewsletter subscribers are asked to contribute their answers. Survey proposals are channeled through the respective ECCO Committee and undergo through a strict evaluation process, to ensure that ECCO Members' valuable time is well spent. 

As a thank you for your participation, all survey participants are invited to submit their email address for an annual lottery drawing of 3 x ECCO Interaction Tickets for the upcoming year. 

Please send a short email to the ECCO Office at This email address is being protected from spambots. You need JavaScript enabled to view it.

Kind regards,
The Governing Board of ECCO

UPCOMING SURVEY

“Identifying clinical practices and clinician attitudes towards treating mild Crohn’s disease”

Project leader:
Robin Dart
Purpose and outcome:
Deadline:  The Survey will be open on June 28 until July 25, 2021
Target group: ECCO'21 Congress Delegates

CLOSED SURVEYS

Inflammatory Bowel Disease, Advice Line during SARS-CoV-2 learning from experience

Project leader:
Pearl Avery
Purpose and outcome:
Target group: IBD Nurses

Current Practice and perspectives of physicians on thiopurines efficacy, toxicity and utility of TPMT activity and metabolites measurement

Project leader:
Paula Sousa, Paula Ministro, Fernando Magro (on behalf of GEDII)
Purpose and outcome: There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery is, the impact on the quality of life, and the worries about it.

Target group: All doctors at any stage of their career managing patients with IBD

Decision-making in IBD dysplasia management survey

Project leader:
Misha Kabir 
Deadline: February 15, 2020 
Results:

Perception of cancer risk in inflammatory bowel disease-associated dysplasia and management practice is influenced by colonoscopy experience and workplace affiliation: results of an international clinician survey (Journal of Crohn's and Colitis, Volume 15, Issue Supplement_1, May 2021)

Target group: ECCO’20 Delegates of Educational Programme

Ileocolonic Crohn’s Disease post-operative recurrence prophylaxis after curative ileocolonic resection with ileocolonic anastomosis

Project leader:
Gabriele Dragoni
Year: 2019
Results:

Short report - The prevention and management of Crohn's disease postoperative recurrence: results from the Y-ECCO/ClinCom 2019 Survey

Check the results here

Target group: ECCO’19 Delegates of Educational Programme

Withdrawal of Therapy in IBD Survey Study

Project leader:
Ray Boyapati
Year: 2018
Results: European clinician perspective on withdrawing immunosuppression (Journal of Crohn's and Colitis, Volume 13, Issue Supplement_1, March 2019)
Target group: ECCO’18 Delegates of Educational Programme

Physician attitudes about use of immunosuppressive therapy for Inflammatory Bowel Disease in the elderly

Project leader:
Webber Chan
Year: 2017
Results: Physician attitudes about the use of immunosuppressive therapy for inflammatory bowel disease in the elderly (Journal of Crohn's and Colitis, Volume 12, Issue supplement_1, February 2018)
Target group: ECCO’17 Delegates of Educational Programme

Assessing aCCess to investigations in IBD (ACCID) – results from an international inflammatory bowel disease survey

Project leader:
Y-ECCO and ClinCom
Year: 2016
Results: Complete metabonomic and microbiota profiling identifies biomarkers for anti-TNF therapy response (Journal of Crohn's and Colitis, Volume 11, Issue suppl_1, February 2017)
Target group: ECCO’16 Delegates of Educational Programme

General List of Survey Publications

EFCCA Survey on Patient Perceptions on Surgery

Project leader:
Antonino Spinelli
Purpose and outcome: There are some topics that are hard to discuss, for which people may not want to share their opinions. Surgery in people with Inflammatory Bowel Disease is one of these neglected topics. It is, however, extremely relevant and important to collect information about the perception of surgery is, the impact on the quality of life, and the worries about it.

Timeline:          
2019
Results: Upcoming
Target group: Patients

ECCO Strategic Survey

Project leaders:
ECCO Governing Board 
Purpose: At the point when the survey was conducted, there was no evidence for transition from paediatric to adult care. This survey was meant to determine which ideas on transition are most important to you as health professional.

Timeline:          
2019
Results: The survey results will then serve as a basis for a Topical Review on Transition.
Target group: ECCO Members, Participants at the 1st Council of National Representatives

Survey on phenotypic features of couples with IBD and their offspring

Project leader:
Joana Torres
Purpose:

The aim was to collect information from the children from couples both affected by IBD and to ascertain those who developed IBD (and other IMID), and thereafter collect information on their disease (year of diagnosis, disease type, disease phenotype).

Year:  2018
Results: 
Target Group: ECCO Regular and Y-ECCO Members as well patient associations

EpiCom Survey - Registries across Europe: Epidemiological research and beyond

Project leaders:
Ebbe Langholz; Hannah Gordon
Purpose: At the point when the survey was conducted, there was no evidence for transition from paediatric to adult care. This survey was meant to determine which ideas on transition are most important to you as health professional.
Timeline:          
2015-2017
Results:
Target group: National Registries

 

BIOCYCLE Health Care Provider Survey

Project leaders:
Corey Siegel and Edouard Louis
Purpose: The survey aimed to identify patient and physician opinions and preferences for withdrawal of combination therapy for patients with Crohn’s disease who are in remission. This survey initiative was part of the European Commission funded BIOCYCLE project.
Year:          
2016
Results:
Target group: US providers identified by CCFA,  European GIs identified from a combination of the ECCO and French, German and Belgian GI providers.

Defining Key Performance Indicators for the Surgical Management of Inflammatory Bowel Disease:

Project leaders:
Omar Faiz, St. Mark’s Hospital London, London, United Kingdom
Purpose and outcome:
This study aimed to achieve pan-European expert consensus on the development of KPIs that will be used to measure quality of service provision in IBD surgery. The objective was to improve quality of care for the IBD patient by developing new tools with which to measure and focus resources more efficiently. Development of a set of KPIs through national expert consensus techniques should facilitate their incorporation into working practice with the ultimate goal of improving the patient experience and outcomes of IBD services, and improve clinical care processes by devising standard care pathway for patients undergoing IBD surgery.
Year:           
2015
Results:
Target group: ECCO Members: Consultant colorectal surgeons and consultant gastroenterologists

Y-ECCO Survey on Training Needs

Project leaders:
ECCO Governing Board
Purpose: The Y-ECCO Committee conducted a survey to assess trainees' attitudes towards academic medicine, their intentions (or not) to undertake research, and their opportunities to do so. Trainees were invited to participate via their national societies, by ECCO and by other international organisations including ESPGHAN  and ECSP.
Year:          
2013
Results: https://www.ecco-ibd.eu/publications/congress-abstract-s/abstracts-2014/item/p589-the-future-of-academic-gastroenterology-insights-from-a-europe-wide-survey-of-trainees.html?highlight=WyJ0cmFpbmluZyIsInRyYWluZWQiLCJ0cmFpbiIsInRyYWlucyJd
Target Group: ECCO Members

ECCO Gender Survey

Project leaders:
ECCO Governing Board
Purpose: Although 44.5% of Congress delegates at the ECCO ’14 Copenhagen Congress were females, a gender imbalance can be seen within ECCO Activities: only one-third of ECCO Committee Members were females. Thus, ECCO President Séverine Vermeire decided to ask female ECCO Members what keeps them from applying
Year:          
2014
Results: https://www.ecco-ibd.eu/images/6_Publication/6_2_ECCO_News/2014_Nr2_Insert_ECCO_News.pdf
Target Group: ECCO Members

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