UR-CARE

DEMO VERSION-OPEN ACCESS

The United Registries for Clinical Assessment and Research (UR-CARE) platform is an online international registry capturing IBD patients' records in an easy and comprehensive way. UR-CARE is designed for daily clinical practice and research studies and is available to study groups as well as to individual centres. 

Left to Right: Luis de Lorenzo (Persei), Anastasia Agres (Persei), Naila Arebi, Ebbe Langholz, Filip Baert (IBDIM DM), Javier P. Gisbert, Gerhard Rogler, Fernando Magro, Britta Siegmund, Roberto Bravo (Persei)

TAKE A FIRST LOOK AT THE UR-CARE DATABASE:   

Reach out to UR-CARE Team, if you are interested and have any open questions at: This email address is being protected from spambots. You need JavaScript enabled to view it.

Read the full article in JCC - Validation of the “United Registries for Clinical Assessment and Research” (UR-CARE), a European online registry for clinical care and research in IBD 

OVERVIEW OF THE IBDIM STUDIES USING THE UR-CARE DATABASE   

STUDY: DevEloping Clinical decision support system for Inflammatory Bowel Disease treatment de-escalation (DECIDE).
AIM: Generate data that will help the clinician to implement treatment de-escalation for their patients with Inflammatory Bowel Disease in the routine practice.

STUDY: An international Multi-Interventional Registry study for chronic ileoAnal pouCh Leaks in UC (the MIRACLE- project).
AIM: Determine the functional anastomotic integrity rate 12 months postoperative after implementing multi-interventional program based on best peri-operative clinical care and assess long-term functional anastomotic integrity rates for patients that received current peri-operative care by performing a retrospective cohort study.

More information on how to conduct studies can be found here.


Learn more about the Governing Structure of UR-CARE. 

GOVERNING STRUCTURE OF UR-CARE


Find the answers to your UR-CARE questions. 

INTRO VIDEOS & FREQUENTLY ASKED QUESTIONS (FAQs)

    

Contact: This email address is being protected from spambots. You need JavaScript enabled to view it.

This project is facilitated by IBDIM - IBD in Motion GmbH, the Research Unit of ECCO.