N23 Concerns of patients with inflammatory bowel disease in the process of disease management
S.M. Mohsenizadeh1, Z.S. Manzari2, H. vosoghinia3, H. Ebrahimipour4
1Department of Medical Surgical Nursing, School of Nursing and Midwifery- Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of, 2Department of Medical-Surgical Nursing- Nursing and Midwifery Care Research Center, School of Nursing and Midwifery- Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of, 3Department of Gastroenterology and Hepatology, Ghaem Hospital- Mashhad University of Medicine Science, Mashhad, Iran- Islamic Republic Of, 4Social Determinants of Health Research Center- Department of Health Sciences, Mashhad University of Medical Sciences, Mashhad, Iran- Islamic Republic Of
Background
Inflammatory bowel diseases (IBD) are among the most common disorders that cause poor quality of life and impose a lot of social and economic burden on patients and their family. Therefore, identifying the main concerns of these patients in the management of the disease is very important for designing a specific care plan. The aim of this study was to explaining the concerns of patients with IBD in the process of disease management.
Methods
This research was carried out using thematic analysis method. Sixteen patients with at least one year of IBD were interviewed individually by semi-structural questions. Their main concerns in the management of the disease were analysed.
Results
The main concerns of patients with IBD were categorised into four main groups as follows: mental (negative attitude toward disease, encounter with disease, tolerance of tough condition, maladaptation, acceptance and denial of disease), behavioural (avoidance of situations, out-of-home planning, physical activity, diet, seeking information, seeking the best treatment), socioeconomic (weak support, high cost of treatment, confidentiality of the disease), and biomedical (supplying medicine and experiencing surgery). These concerns have a substantial impact on patients’ ability regarding the reconciliation of their living with disease.
Conclusion
By identifying the concerns of patients with IBD in their disease management process, nurses can develop care programmes and interventions to meet the essential needs of these patients.