ECCO Country Member Profiles
15December2020

Interview with N-ECCO National Representative Portugal

Clarisse Nogueira Maia
© Clarisse Nogueira Maia
  Portugal

N-ECCO National Representative:
Clarisse Nogueira Maia
Job Title: 
Nurse


 

What influenced your decision to apply for the role of N-ECCO National Representative for your country?

I have worked with IBD patients for a long time, delivering IV drug administration in an outpatient clinic.

What IBD nursing initiatives, N-ECCO network opportunities or developments in IBD care are happening in your country?

We have an annual meeting of the IBD Group to promote IBD in Portugal.

Posted in ECCO News, Volume 15, Issue 4, ECCO Country Member Profiles, N-ECCO

15December2020

ECCO Affiliate Member Profile: Egypt

  Egypt

Name of group: Egyptian Developers of Gastroenterology and Endoscopy (EDGE) Foundation

Number of active members: 130

Number of meetings per year: 

Major Events: Annual Meeting “DIGEST” in winter and Cairo Crohn’s & Colitis Congress “4Cs” in summer ( in 2021 an ECCO Educational Workshop to be included).

Minor Events: Monthly meetings directed at fellows and GI specialists in different regions in Egypt

Online Activities: Regular webinars directed at healthcare professionals (replacing monthly meetings during the pandemic) and five multidisciplinary IBD patient webinars annually. Community awareness campaign on IBD throughout the year via social media platforms, including videos, advice articles and consultations.

General Assembly: One in summer and one in winter.

President and Secretary: Mohammed Khorshid (President), Mohamed El-Nady (Secretary-General)

National Representatives: Mohammed Khorshid

Joined ECCO in: 2020

Incidence of IBD in the country: There have still been no sufficient demographic studies.

 

Posted in ECCO News, Volume 15, Issue 4, ECCO Country Member Profiles

15December2020

ECCO Country Member Profiles: Greece

 Greece

Name of group: Hellenic Group for the Study of Inflammatory Bowel Diseases (EOMIFNE)

Number of active members: 176 regular members and 18 honorary members

Number of meetings per year: one (1) annual congress and various one-day meetings and webinars (approximately three to six per year). Training school for Inflammatory Bowel Disease with five annual two-day lessons, accepting participants (specialists or trainees) from all over Greece who have a special interest in Inflammatory Bowel Diseases and want to increase their knowledge.


 © EOMIFNE

 © EOMIFNE

Posted in ECCO News, Volume 15, Issue 4, ECCO Country Member Profiles

15December2020

ECCO Country Member Profiles: Croatia

  Croatia

Name of group: Croatian Society of IBD, Croatian Medical Assocation & IBD Section, Croatian Society of Gastroenterology

Number of active members:  70

Number of meetings per year: 4

Name of president and secretary: Željko Krznarić and Marko Brinar

National Representatives: Željko Krznarić and Ante Tonkić

Joined ECCO in: 2001 (Boris Vucelic, ECCO Honorary Member, was one of the founders of ECCO)

Incidence of IBD in the country: Zagreb City and Area 2010: UC 3.3/105, CD 3.3/10

Primorsko-Goranska County, Croatia, 2000–2004: UC 4.3/105, CD 7.0/10

Vukovarsko-Srijemska County, Croatia, 2001–2010: UC 3.5/105, CD 0.95/10

Today we are seeking and collecting new data since we are aware of a significant increase in the incidence of IBD during the last decade.

Posted in ECCO News, Volume 15, Issue 4, ECCO Country Member Profiles

15December2020

ECCO Country Member Profiles: Ukraine

  Ukraine

Name of group: Ukrainian IBD Group

Number of active members: 87

Number of meetings per year: 2

President and Secretary: A. Dorofeyev and T. Zviagintzeva (Co-presidents), Yulia Dynia (Secretary).

National Representatives:  A. Dorofeyev, T. Zviagintzeva

Joined ECCO in: 2008

Posted in ECCO News, Volume 15, Issue 4, ECCO Country Member Profiles

30September2020

Interview with N-ECCO National Representative France

Virginie Cluzeau
© Virginie Cluzeau
  France

N-ECCO National Representative:
Virginie Cluzeau
Job Title: 
Clinical research and patient education IBD Nurse


 

What influenced your decision to apply for the role of N-ECCO National Representative for your country?

The nurse that I replaced as French representative 4 years ago explained what the position involved. I was really interested to know how it works for nurses in other countries, and I thought that taking up this role could be useful in improving the position of IBD Nurses in France.

Posted in ECCO News, Volume 15, Issue 3, ECCO Country Member Profiles, N-ECCO

30September2020

ECCO Country Member Profiles: Lithuania

  Lithuania

Name of group: IBD Group of Lithuanian Society of Gastroenterology

Number of active members: 28

Number of meetings per year: 4–5

President and Secretary:

Gediminas Kiudelis: President

Juozas Kupčinskas: Secretary General

National Representatives: 

Limas Kupčinskas

Gediminas Kiudelis

Joined ECCO in:

The IBD Group of Lithuanian Society of Gastroenterology joined ECCO in 2002.

Incidence of IBD in the country: 11.6/100,000

Posted in ECCO News, Volume 15, Issue 3, ECCO Country Member Profiles

30September2020

ECCO Country Member Profiles: Czech Republic

  Czech Republic

Name of group: The Czech IBD Working Group

Number of active members: The Czech IBD Working Group has no official membership, but there are approximately 30 active participants who attend the meetings and participate in group activities.

Number of meetings per year: The group organises three or four meetings per year.

President and Secretary: There is no official president and secretary, but the coordinator of the group is Martin Bortlik.

National Representatives:  Pavel Drastich and Dana Duricova

Joined ECCO in:

The Czech IBD Working Group became a member of ECCO in 2002.

Incidence of IBD in the country: According to an international epidemiological study – the ECCO-EpiCom study – the incidence of IBD in 2010 was 12.7/100,000 inhabitants (5.6 for CD and 5.8 for UC).

Posted in ECCO News, Volume 15, Issue 3, ECCO Country Member Profiles

30September2020

ECCO Country Member Profiles: Switzerland

  Switzerland

Emanuel Burri 
© Emanuel Burri
Michel Maillard
© Michel Maillard

Name of group: IBDnet (www.ibdnet.ch)

The IBDnet is a Swiss interest group of medical doctors and scientists specialising in Inflammatory Bowel Disease. The aim is the promotion of research and communication on aetiology, diagnosis and therapy in order to improve patient outcomes.

Number of active members: 137

Switzerland has roughly 475 gastroenterologists and hepatologists, 350 of whom are located in the German-speaking part of Switzerland and 125 in the French- and Italian-speaking part.

The IBDnet has 122 members, with a steering committee of 15 IBD specialists.

Number of meetings per year: 

  • Steering committee meetings: four per year; one General Assembly per year.
  • Education:
    • Educational meetings with credits for HCPs: One or two major (2- or 3-day meetings, postgraduate course) and 10–12 minor (half-day meetings or webinars)
    • Educational meetings for IBD Nurses: Two 1-day meetings
  • Expert meetings: The IBDnet holds one or two expert meetings per year to develop Swiss expert opinions for peer-reviewed publication.
  • Patient Relations: The IBDnet broadly supports and organises four to six patient events or webinars per year in collaboration with the patient association CCS (Crohn Colitis Switzerland). Most speakers at these patient information events are IBDnet steering committee members. Furthermore, in collaboration with the patient association, IBDnet develops and releases patient information guidebooks.

 

Meetings in 2020: 17 accredited educational activities (11 webinars for HCPs, three webinars for patients, two 1-day nurse workshops, one 3-day postgraduate course)

President and Secretary: President: Stephan Vavricka, Zurich, Secretary: Nadine Zahnd-Straumann, Zurich

National Representatives: Emanuel Burri, Liestal and Michel H. Maillard, Lausanne

Joined ECCO in: Switzerland was among the founding members of ECCO.

Incidence of IBD in the country: No exact number available. IBD incidence is estimated to be 2 per 1000 persons per year.

Posted in ECCO News, Volume 15, Issue 3, ECCO Country Member Profiles

30June2020

ECCO Country Member Profiles: Romania

  Romania

Name of group: Romanian Crohn’s and Colitis Club (RCCC)

Number of active members: 147

Number of meetings per year: 2: one at the National Congress of Gastroenterology and Hepatology and one at the National Symposium of IBD

President and Secretary: Daniela Dobru (President), Maria Ciocirlan (Secretary)

National Representatives:  Mircea Diculescu, Adrian Goldis

Joined ECCO in: 2007

Incidence of IBD in the country: approx. 100/100,000 inhabitants (UC:CD approx. 60:40)

Posted in ECCO News, ECCO Country Member Profiles, Volume 15, Issue 2

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